Consortium

University College Dublin, Ireland
The Insight Centre for Data Analytics

The UCD team is based in Insight Centre for Data Analytics. It is Ireland’s leading research centre for the study of Data Analytics. In a joint initiative between Dublin City University, NUI Galway, University College Cork and University College Dublin, Insight brings together more than 400 researchers and works with more than 75 industry partners. The centre performs fundamental and applied research in a range of research areas, including data analytics, recommender systems, media analytics, real-time analytics, data streams and sensor networks, knowledge discovery, natural language processing, social network analysis, among others. Research outcomes are applied in a range of use cases projects co-financed by the industrial partners, including eBusiness, eHealth, Green & Sustainable IT, Smart Cities, Smart Buildings, and Life Sciences.

Researchers:

  • Shane O’Donnell is a postdoctoral researcher at Insight Centre for Data Analytics, UCD and coordinator of OPEN. His expertise lies at the intersection of several disciplines including sociology, connected health and the lived experience of chronic disease.  He has lived with type 1 diabetes for more than 15 years

  

  • Tahar Kechadi, Professor of Computer Science at the  Insight Centre for Data Analytics, UCD. His research interests span the areas of Data Mining, distributed data mining economics, heterogeneous distributed systems, Grid and Cloud Computing, and digital forensics and cyber-crime investigations.

  

  • Gerardine Doyle, Professor of Accounting and Taxation at University College Dublin, is Director of the UCD Michael Smurfit Graduate Business School. Gerardine is Associate Dean of the UCD College of Business. Her research interests include health literacy, value measurement for healthcare and the nexus between tax and health policy. A key motivation of Gerardine’s research agenda is to deliver societal impact by engaging in societal-challenge orientated research to influence national and international policy with special emphasis on health, tax and education policy.

  

 

Charité – Universitätsmedizin Berlin, Germany
Department of Paediatric Endocrinology and Diabetes

Charité – Univerisitätsmedizin Berlin is one of the largest European university hospitals. Clinical care, research and teaching is delivered by physicians and researchers of the highest international standard. CUB proudly lays claim to more than half of all German Nobel Prize winners in Physiology or Medicine, including Emil von Behring, Robert Koch, and Paul Ehrlich. CUB is internationally renowned for its excellence in teaching and training. CUB represents a single medical faculty, which serves both Humboldt Universtität zu Berlin and Freie Universität Berlin. Innovative capacity and responsible governance, for the benefit of patients and society – these are the central tenets behind all of Charité research endeavors. Approximately 3,700 researchers are actively engaged in the development of pioneering innovations in the field of medicine. Committed to the highest standards of quality and sustainability, they work across 1,000 projects, working groups and collaborative projects. There is a particular focus on the interface between basic and patient-oriented research, which seeks to foster interdisciplinary collaborations with both national and international partners. Harnessing the potential of this approach is of particular importance to Charité given that the most significant scientific developments are likely to arise from interdisciplinary cooperation. While committed to both national and international research, and growing its reputation on both the national and international stage, Charité remains true to its roots. Charité is very much the heart of Berlin-based health care research as well as its driving force. Developed in cooperation with the Max Delbrück Center for Molecular Medicine (MDC), the Berlin Institute of Health (BIH) continues to expand, offering a systems medicine approach that is unique in Germany.

Researchers:

  • Katarina Braune is a Medical Doctor and post-doctoral researcher, focussing on the digital transformation of diabetes care. She is co-chair of the non-for-profit organization Hacking Health Berlin and Advisory Board member of the Diabetes and Technology task force of the German Diabetes Society and leading companies in the diabetes industry. Living with type 1 diabetes herself since childhood age, she empowers others as a global advocate and spokesperson in diabetes (e.g. as a Young Leader in Diabetes of the International Diabetes Federation, invited speaker at the World Diabetes Conference, Frontiers Health and TEDx).

  

  • Klemens Raile is professor in Paediatrics and head of the department. He is specialized in Paediatric Endocrinology and Diabetes and his research focus ranges from care and treatment of children type 1 diabetes and prevention of any diabetic complications to investigating new, molecular mechanisms in rare diabetes phenotypes, among those syndromal diabetes, familial diabetes and childhood-onset type 2 diabetes.

  

 

 


Steno Diabetes Center, Copenhagen, Denmark

Steno Diabetes Center Copenhagen (SDCC) is the largest diabetes clinic in Scandinavia and treats each year more than 9000 people with diabetes from the Capital Region. SDCC is a hospital specialised in patient care, research, and prevention of diabetes and in the education of healthcare professionals within diabetes. SDCC is one of few centers globally that focus on diabetes only and has research, education and health promotion closely connected to the clinical care of patients. From the earliest stages of risk for diabetes to patients with longstanding diabetes and development of complications, we ensure that research results are directly implemented to improve patient care and management as well as targeting new approaches to disease prevention.

Researchers:

  • Bryan Cleal is a senior researcher with expertise is in relation to qualitative methods and analyses. Many of his 170+ publications focus on the topic of quality of life outcomes for patients with type 1 diabetes.

  

  • Ingrid Willaing Tapager is a researcher specialised in health services, including health technology assessments, studies of health care professionals, patients and persons at risk of chronic illness.

  

 

  

International Diabetes Federation Europe, Brussels, Belgium

IDF Europe is an inclusive and multicultural umbrella organization of 71 national diabetes associations in 46 countries across the European region, representing people living with diabetes and healthcare professionals. Through our activities we aim to influence policy, increase public awareness and encourage health improvement, as well as promote the exchange of best practice and high-quality information about diabetes throughout the European region.

Researchers:

  • Winne Ko obtained her bachelor degree in Government and Public Administration and a master degree in Political Science. Her professional experience spans government, non-governmental organisations and the private sector.

  

 

     

T1International, Cheltemham, United Kingdom

T1International is a gloabal advocacy organization for people with type 1 diabetes that believes in a world where everyone with type 1 diabetes – no matter where they live – has everything they need to survive and achieve their dreams. T1International serves as a knowledge hub to give a clear picture of the issues, offer resources, and signpost people and organisations to further information that can support them. T1International pushes for and collects the best data and statistics to ensure the problems are being tackled in the best way and reaching the most underserved populations. The organisation supports local communities by giving them the tools they need to stand up for their rights so that access to insulin and diabetes supplies becomes a reality for all.

Researchers:

  • Elizabeth Rowley is the founder and Director of T1International. She has lived with type 1 diabetes for over 25 years and has experienced life in both the USA and UK healthcare systems. Elizabeth has a qualitative research background and strong links with a huge range of communities around the world. She offers a valuable perspective to the health inequality discussion and can help the team not only with data, but will provide a diverse lens through which to analyse the various stages of the project and overall approach.

  • James Elliott is a global health researcher and has experience with MSF Canada’s program unit. He worked with MSF OCG during two operational research missions to Bekaa Valley Lebanon. James’s skills include scientific literature review, research methodology, delphi panels, facilitation, healthcare writing, large scale questionnaire design implementation and analysis.

#dedoc° Labs, Berlin, Germany

dedoc labs is the company behind #dedoc°, Europe’s largest network of independent patient advocates in the diabetes sphere. #dedoc° connects members of the diabetes community through a common platform, dedicated social media channels, community events and a shared vision for the patient voice.

Researchers:

  • Bastian Hauck is a professional sailor, author, entrepreneur – and type 1 diabetic. He is the founder of the #dedoc° Diabetes Online Community, CEO of dedoc labs and member of the board of DiabetesDE – German Diabetes Aid, where he is responsible for patient engagement and advocacy. He is also a director at the International Diabetes Federation Europe. As public speaker and diabetes advocate, Bastian Hauck promotes taking the patient voice seriously. He works as a consultant on patient centered communication and digital health solutions.

  

 

OpenAPS

The Open Artificial Pancreas System project (#OpenAPS) is an open and transparent effort to make safe and effective basic Artificial Pancreas System technology widely available to more quickly improve and save as many lives as possible and reduce the burden of type 1 diabetes.

Researchers:

 

  • Dana Lewis is the founder and a developer of OpenAPS. After first building her own DIY “artificial pancreas,” Dana helped found the open source artificial pancreas movement, aiming to make safe and effective artificial pancreas technology available (sooner) for people with diabetes around the world. She is also a Principal Investigator for a Robert Wood Johnson Foundation funded grant project called “Opening Pathways” to work to scale patient-led innovation and scientific discovery in more patient communities.

 

 

AndroidAPS

AndroidAPS is a free and open source research tool-kit with which patients can build their own closed loop artificial pancreas system controlling a Sooil Dana R/RS or Accu-Chek Spirit Combo insulin pump.

Researchers:

  • Adrian Tappe is a computer scientist and very involved in the voluntary development of open source apps and tools that help people with type 1 diabetics. He was diagnosed with type 1 in 2004. His engagement in the #WeAreNotWaiting community began in 2014 when he joined the NightScout and xDrip development team to help parents, caregivers and patients make better use of their CGM systems including remote monitoring and integration into every days electronic devices breaking the barrier of medical devices and the reality patients live in. He is now one of the main developers of AndroidAPS.